I had no intention of not writing here, in this space. I'm am ready to come back starting with posting WEGO Health's 2019 Acromegaly Awareness post. It will quickly have a follow up because who knew... Acromegaly Awareness: You’re Very... Continue Reading →
Don’t Tell Me it’s All in My Head, Doctor. I’ve known — inherently known — that I have some autoimmune issues. Seems to be an underlying factor with acromegaly. You find a line here and there in articles with some... Continue Reading →
Last Monday, at the start of Holy Week, Notre Dame burned. That first day we watched in horror and wondered if all was lost. I cried that day. My heart hurt. The world watched …People posted photos of their trips... Continue Reading →
I spent January and February switching my insurance to a New York provider, searching for doctors and asking friends and people I have met along the way for doctors names. Next, I started with calling the hospitals with these doctors,... Continue Reading →
After a nomadic end to 2018 we arrived in New York on December 28. Still feeling unsettled, having a to buy all new furniture – we moved in with an air mattress, iPad, computer, two mugs, two bowls and some... Continue Reading →
Not everyone with acromegaly has their life permanently altered. What a blessing. My blessing comes in the form of strength — not physical strength but perseverance, kinda strength. You’d think life is hard enough with all of my physical issues... Continue Reading →
Acromegaly awareness day… Once again it’s one day. What did you become aware of? Still can’t pronounce it… Acro-what? It’s still too much growth hormone but what does too much growth hormone do? Since last November first, I’ve had my... Continue Reading →
On the eve of another Acromegaly Awareness Day... What has anyone learned since last year? What does anyone do? My beautiful God-sister is 22, bright, charming, ditzy at times (She’ll say I’m annoying and extra for the "ditzy" addition. But... Continue Reading →
Less than a month ago my husband was offered a job in NYC. We need this! ....And beyond ready to move back north. He delayed starting to be home for my tongue electrocution procedure. That would be, RF (radio frequency)... Continue Reading →
